Browsing health

Quebec has streamlined its H1N1 vaccination system by borrowing a trick from Disneyland's "Fastpass" queueing system. At Disneyland (and other Disney parks), busy rides have Fastpass ATMs at their queue-heads. Would-be riders insert their park-tickets and get a reservation stub in return, advising them to return later in the day in a one hour window (say, 1:15-2:15) (pro tip: Disney doesn't enforce the "expiry" time, only the "ripening" time, so you can go any time after 1:15, which means that you can collect Fastpasses all morning when the lines are short and use them all afternoon when the lines are long).

Quebec's health-care system is doing the same, banishing seven-plus-hour waits in favor of a quick, efficient system that allows people to return at a later time for very quick treatment.

Tony Benn, the great British politician, recently gave a CBC radio interview where he decried New Labour's approach to governance, saying that they'd stopped seeing themselves as the people's representatives and started seeing themselves as the people's managers. This is true around the world, I think -- Bush was the "CEO President" and Obama has appointed a "CTO" for America. Canada's Harper government clearly sees itself as running Canada, Inc. And, of course, China and Singapore's politburos are unabashed managers and make no real pretence to representing their populations.

And there are some benefits to a "management" approach -- this being one of them. Disney manages crowds like no one else. If you have crowds that need managing, take a notebook and a camera to Disney World for a week and come back with the solution to your problem.

But in the main, I'm a lot happier to be represented than managed. A CTO tries to maximize the profitability of technological deployments for highest return on investment; a Minister (or Secretary) of Technology would maximize the social benefits of technological deployments. A CEO tries to return maximum value to his shareholders; a President or Prime Minister tries to govern for maximum social justice and prosperity.

Every now and again, though, "management" and "representation" dovetail, and here's one of those places where it does. I want my representatives to manage the problem of getting us all vaccinated, and I'm happy to see them use the best tools for doing that, wherever they originate.

Lines are still forming at some vaccination centres, where people are queuing up early just to get their coupons. But officials say the system has been effective. At one vaccination centre in Montreal's Plateau Mont Royal district recently, nurses and health workers outnumbered people in line.

"The system is marvellous," said Johanne Spencer, who'd whisked through her vaccination. "You know what time you're going to have your turn and you know how long you'll have to wait. You don't waste three, four hours in line."

Montreal adopted the coupon system for all 17 vaccination centres across the city.

"Something had to be done," said Deborah Bonney, a spokeswoman for the Montreal-region health and social service agency. "At the beginning, we had no idea people were going to line up in the dark of the early morning in the cold. Confronted with the situation, the coupon system seemed to be the best option. It seems to have done the trick."

Quebec's Disney-inspired solution to flu-shot chaos (Thanks, Mom!)

(Image: Con FastPass ya habrĂ­as entrado, a Creative Commons Attribution-ShareAlike photo from jmerelo's Flickr stream)

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During the health care debate in congress, more than a dozen US lawmakers all parrotted talking points scripted for them by lobbyists working for biotech/drug giant Genentech. So what? Said one of those lobbyists, "This happens all the time. There was nothing nefarious about it."

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Stupid, draw back your bow

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In my spam: boner pill fantasy art. This is a real image that adorned a spam email message from a Chinese meds site.

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The Eyewriter

eyewriterlg.jpg The folks at Graffiti Research Lab, openFrameworks, The Fat Lab and The Ebeling Group have teamed up to create The EyeWriter, a "low-cost eye-tracking apparatus + custom software that allows graffiti writers and artists with paralysis resulting from Amyotrophic lateral sclerosis to draw using only their eyes." Instructables has a post up. I'd love to witness this in action, up close, with someone who really needs to use it. I am personally familiar with ALS (a family member died of the disease). Any technology that helps people with ALS retain the ability to communicate sounds like a wonderful, wonderful thing to me. (Thanks, Christy Canida!)

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fuckcancer.jpg For survivors-to-be whose healing arsenal includes attitude. I dedicate this post, on this particular day, to Gloria Rosa Linda, who is going to beat the living shit out of breast cancer. Sewing kits range from $12 to $20, depending on what materials you'd like to include. Julie Jackson is the crafter behind them. See also these bracelets, too (those are not for sale) (subversivecrossstitch.com, via Fuzzy Gerdes)
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The best form of exercise for maintaining healthy bones is apparently jumping up and down as many times as you can without inspiring your downstairs neighbor to come upstairs and break your bones.

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We aren't very good at predicting either one much further out than a week or two.

A BBC story (and film) talks about the problems virologists and public health defenders face as they tackle a virus like H1N1 flu and try to figure out how the disease will impact people around the globe. It's an honest examination of both the strengths of science, and the barriers that exist around human knowledge.

Such are the limitations of science, whether meteorology or virology. The recent H1N1 or swine flu predictions have led to forecasts of 65,000 deaths in the UK - but the truth is, we simply don't know. Yet in reporting the outbreak, the media broadly falls between two extremes - from alarming scare stories to experts who purport mass vaccination to be "madness, foolhardy and a gamble". Whatever happens when the pandemic pans out, there will be a substantial third group - the "I told you so" faction. Pandemic disease remains a critical test of the extent of what we do and don't know.

Pandemics--What History Tells Us on the BBC, via Holly Tucker.

Image courtesy Flickr user chascar, via CC.

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Everyone's still confused about whether there's a link between cellphone use and cancer. In other news, everyone's still worried there may be a link between cellphone use and cancer. Safer either way, perhaps: use corded earbuds to reduce RF exposure?

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One morning in a fitness boot camp

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I was driving along the San Francisco waterfront one morning when a sign on a white tent in the Marina Green parking lot caught my eye. It said Reactt: The Only Real Boot Camp in San Francisco. I was curious, so I googled it when I got home.

Originally, the term "boot camp" referred to the training program military recruits go through before they're deployed. In the mid-2000s, boot camps for rehabilitating juveniles caused a media frenzy when a boy's tragic death was caught on camera.

These days, it has become a popular title for extreme fitness programs that start really early in the morning and command lots of repetitive hard core exercise under the watch of really buff instructors. Reactt is one of them, and since I've always wondered what being at boot camp might be like, I decided to try it out.

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And Now, Some Ripped-From-the-Headlines Context.....

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AlterG sideview girl.JPGWhen I finished my first half-marathon last month, I experienced what it felt like to run on the ground for two hours. But what is it like to run in a gravity-reduced vacuum? When AlterG offered me the chance to demo their new "anti-gravity" treadmill, I couldn't resist. I jumped in my car and headed over to the gym at UCSF, down in the Mission Bay neighborhood of San Francisco.

A physical therapist named Chris gave me a rubber tube to wear over my running clothes. It looked like a cross between a wetsuit, a tire, and a tutu, and it had a giant zipper going across the top. He told me to step up onto the ramp and then zipped me into the giant rubber veil that covered what otherwise looked like a pretty ordinary treadmill.

The AlterG is no ordinary treadmill, though. It is a super fancy, super-expensive treadmill that isolates the lower body in a vacuum and literally takes off percentages of your body weight using technology developed by NASA. It's meant to help disabled, overweight, and injured people get a solid cardio workout without putting a strain on their limbs, but at this particular gym anybody can sign up to buy time on the machine in 30-minute increments. The AlterG uses air pressure to create the sensation of lost weight — the machine can reduce your body weight by up to 80%, making you feel like you're floating, flying, or bouncing on clouds.

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hymen.jpgNews reports earlier this month created a global stir around an odd "made in China" product marketed to the Middle East - cheap artificial hymens. They're intended for use by brides who feel compelled to fake virginity, in countries where not being a virgin at marriage is a very big, very bad thing. Conservative Egyptian politicians wanted to ban the product. One curious (male) blogger in Egypt decided to order one.

Mohammad Al Rahhal picked up the contraband gyno-goods at his local post office in Egypt:

it had been opened by various puzzled customs and postal employees who, at a loss, defined the product in writing as "containing an unknown red liquid" - and awaited my description.
Al Rahhal told inspectors it was "cinematographic make-up," and took his hymen home.

Marwa Rakha over at Global Voices has more from Al Rahhal's product review (he explains how it works, sort-of NSFW if only for use of anatomically specific language). Also, a report at the UK Guardian.

Spoiler: Al Rahhal's verdict? This thing, and the thinking behind it, are totally stupid. "Morality is worst interpreted by anatomy," he says. Bravo, dude.

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Vincent Pearase, of Oak Park High School in Winnipeg Canada, writes:

One of our talented Oak Park students, Andrew Vineberg, helped make this hilarious short, Hiding Your Sexual Orientation From Your Parents 101. The kid is a vlogger, too. He does an amazingly erudite, funny vlog under the moniker Volatile Chemical. Check it out! Andrew has asked to show this at our next school assembly.
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Star Wars Yoga

yoga.jpg LOL. The online yoga instruction site YogaToday.com is offering a Star Wars-themed yoga session this week. The video promises to illustrate the "galactic connection" between asanas and Star Wars. No costumes, alas, but I do believe those are Leia-buns on the head of yoga instructor "Princess Neesha Zollinger," at left. (thanks, Paul Sixta)
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It's new! It's different! Or is it? New Scientist has put together an outline tracing the origins of the H1N1 influenza virus. Surprise: The first date is 1889, the year that jockeying between H1 and H2 variants of flu set the stage for the 1918 influenza pandemic. The virus involved in that was an distant relative of today's H1N1.

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Recreation of Louis Slotin's deadly hands-on experiment. Public domain government image, taken from Wikipedia.

They might know the name, but nobody ever says, "I want to be like Louis Slotin when I grow up." And with good reason. Despite being fiercely intelligent, quick thinking and brave, Slotin is famous for something that nobody really wants to be famous for---namely, dying horribly. In May 1946, Slotin, a researcher on the Manhattan Project, became the second person in history to be killed by a criticality accident, the unintentional triggering of a nuclear chain reaction.

Slotin's story made it to Hollywood, fictionalized in the movie "Fat Man and Little Boy". Not everyone got such a public legacy. As the cold war neared an end in the 1980s, scientists in the USSR began to share information with their American counterparts, and, for the first time, we learned about the Soviet Slotins. Now, their legacy will shape the way emergency personnel respond to nuclear accidents and terrorism and, hopefully, make it easier to save lives...

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A film that denies the link between HIV and AIDS is being screened in the UK by the Spectator, in the name of "spurring debate." The Spectator's editor, Fraser Nelson, describes his motivation: "It's one of these hugely emotive subjects, with a fairly strong and vociferous lobby saying that any open discussion is deplorable and tantamount to Aids denialism. Whenever any debate hits this level, I get deeply suspicious."

And here comes our Ben Goldacre, explaining why "deeply suspicious" (which, to my ears, is a foreshortened phrase whose entirety is "deeply suspicious that I might sell a crapload of newspapers through a reckless disregard for public safety and the truth") is deeply stupid and deeply dangerous:

Of course people will have some concerns. Despite international outcry, from 2000 to 2005 South Africa implemented policies based on the belief that HIV does not cause Aids, and declined to roll out adequate antiretroviral therapy. It has been estimated in two separate studies that around 350,000 people died unnecessarily in South African during this period. We should also remember that "teach the controversy" is a technique beloved of American creationists, and of antivaccination campaigners (with whom Fraser Nelson has also, oddly, flirted). These groups know that in our modern media, where truth is halfway between the two most extreme views, to insert doubt is to win.

But debate is also good. So what kind of debate will the Spectator be hosting? They advertise a panel of "leading medical authorities". There are four people on this panel. One is Lord Norman Fowler. He is not a "leading medical authority".

Charles Geshekter is a professor of African history from the University of Chicago, and is therefore also not a "leading medical authority". He says there is no AIDS epidemic in Africa, simply poverty, and that belief in the epidemic was a product of racism and "western sexual stereotypes". In fact he calls it "The Plague That Isn't", and was on President Thabo Mbeki's notorious Aids Advisory Panel in South Africa in 2000.

Aids denialism at the Spectator
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What you're looking at is the art of bacterial adaptation. It's beautiful. It should also make you a little uncomfortable, and a little hopeful. Part of a collaboration between Professor Eshel Ben-Jacob, of Tel-Aviv University, and Professor Herbert Levine of UCSDs National Science Foundation Frontier Center for Theoretical Biological Physics, these pictures are a visual representation of the way bacteria evolve to overcome life-threatening obstacles---like, say, hand gel. The art is also about the way bacteria fight back, which involves a form of communication. The researchers hope to use that skill against the bacteria to create a new generation of antibacterial weaponry.

While the colors and shading are artistic additions, the image templates are actual colonies of tens of billions of these microorganisms. The colony structures form as adaptive responses to laboratory-imposed stresses that mimic hostile environments faced in nature. They illustrate the coping strategies that bacteria have learned to employ, strategies that involve cooperation through communication. These selfsame strategies are used by the bacteria in their struggle to defeat our best antibiotics. Thus, if we understand the mechanisms behind the patterns, we can learn how to outsmart the bacteria - for example, by tampering with their communication - in our ongoing battle for our health.

The once controversial idea that bacteria cooperate to solve challenges has become commonplace, with the discovery of specific channels of communication between the cells and specific mechanisms facilitating the exchange of genetic information. Retrospectively, these capabilities should not have been seen as so surprising, as bacteria set the stage for all life on Earth and indeed invented most of the processes of biology. As we try to stay ahead of the disease-causing varieties of these versatile creatures, we must use our own intelligence to understand them.

See more by following the link to Prof. Ben-Jacob's site.

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Anti-stress audio

My friend Dr Alan Banack is a former GP and emergency room doctor who now practices in Toronto as a clinical hypnotherapist, mostly working with performance athletes. I've written before about him -- he's the guy who helped me get over a five-year bout of writers' block in my early twenties, and helped me quit smoking for good in 2003. Now he's making some of his relaxation/focus audio available online -- given that he's stopped taking on new patients (he's getting close to retirement), this is about the only way you'll get to benefit from his talents!

Dr. Alan Banack's Anti-Stress Program (Thanks, Alan!)

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PastedGraphic-2.jpgIt's a brisk Saturday afternoon in San Francisco, and I'm standing outside of Sports Basement with a metronome in my hand. Several hundred feet away, a guy in a funny hat is running around the empty parking lot at a consistent 85 steps per minute. His upper body angles forward as his legs cycle backwards to the beat... beep beep beep. It looks kind of ridiculous, but the guy is actually demonstrating an innovative exercise regime that combines the concepts of Tai Chi and mindfulness meditation with athletic techniques used by Kenyan Olympic sprinters. It's called Chi Running, and it's directly related to recent debates around natural vs power running and the case against heavy-duty sneakers.

Most conventional athletic coaches and sports apparel companies advocate power running &mdash running for max speed, personal records, high performance, lots of muscle (think European sprinters with giant legs surging forward and arms pumping furiously). Chi Running takes advantage of a force that comes naturally to all of us — gravity.

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The following true story was told to me by a woman who chooses to remain anonymous for privacy reasons. If you think you have Persistent Genital Arousal Disorder, you can visit this forum for help.

I had my first orgasm at the age of 17. I was sitting at my desk at school when all of a sudden, I felt a warm, pulsing feeling in my genital area. My vagina flared up and I couldn't think straight. It was like someone had squeegeed my thoughts away. I was like, whoa, what's that? It felt really erotic and good, but I was also freaked out, scared, and confused. After that, it started happening a few times a day. I searched online for spontaneous orgasms, but all I found was weird porn.

It kept getting worse. During my second semester of senior year, I counted orgasms on a sheet of paper. I was having 100 and 200 a day. I ran to hide in the bathroom between classes to relieve the pressure.

By the time I started college, the orgasms became even more intense and disruptive, and I was having trouble concentrating. I became really depressed. I didn't know what was wrong with me, and I wasn't getting any better. I cried a lot. I hid in the bathroom. I became violently protective of my privacy. In the beginning, I told everyone I trusted about my condition. People said things like: "You're so lucky!" and "Dude, I'd love to date you." They didn't understand why I wanted it to go away, and labeled me a drama queen. The school psychiatrist thought I was crazy. After my sophomore year, I bought a bunch of vibrators and took medical leave.

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Open source banjo maven Patrick Costello writes,

We have been hosting folk musician retreats for the last couple of years here in Crisfield, Maryland. The idea is to bring musicians together in a funky old house on the banks of the Chesapeake Bay to jam and share ideas. From our very first event we have been able to draw musicians from all over the world and the mix ranges from rank beginners to seasoned professionals. When we started the project we were charging a registration fee to cover food and lodging, but as the event started to grow we realized that we had to rethink how we running things.

For our last retreat on September 17-20 2009 we decided to take a risk and make the event free - food, lodging and access to the event all at no charge. We simply passed the hat and asked folks to contribute what they could to keep the event going. (Canada Goose Records has released a soundscape of our April 2009 Retreat under a CC-license.) This probably won't surprise you, but we wound up bringing in enough to cover a good deal of the expenses for our next retreat on May 6-9 2010.

So we are going to continue running the Crisfield Folk Musicians Retreat as a pass-the-hat funded event. Four days of amazing music, fellowship, good food and amazing scenery for whatever you can afford to throw into the hat.

The Crisfield Folk Musicians Retreat 2010

(Attentive readers will remember that Patrick had been legally and painfully deaf for some time, and recently had corrective surgery via a BAHA implant; he adds, "My Baha implant is amazing. I can hear! For the past month I have been wandering around like a little kid listening to birds and crickets. Most of all I can hear my instruments again. It has been so wonderful being able to just kick back with my guitar and play without struggling to make out the sounds or having to hunch over and rest my teeth on the upper bout. My father caught the activation of the device on video. I have a hard time watching the bit where I hear my guitar for the first time in years. Technology is just grand!)

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When a British girl -- who had an undiagnosed tumor -- died shortly after receiving the HPV (cervical cancer) vaccine, the British tabloids jumped on the story as proof that vaccines are evil and pad and deadly and dangerous. They even quoted respected scientists who agreed with them. Except they misrepreented those scientists' views, got the science completely wrong, scared people away from potentially life-saving treatment, and failed to adequately own up to their mistakes. Ben Goldacre, the "bad science" columnist for the Guardian, has written a scathing indictment of the way the press handled the story.
The story seemed unlikely for three reasons. Firstly, Professor Harper is not a known member of the antivaccination community, which is vanishingly small. Secondly, it was on the front page of the Sunday Express, which is indeed cause for concern. Lastly, it was by specialist health journalist Lucy Johnston, whose previous work includes "Doctor's MMR fears", "Exclusive: Experts Cast Doubt On Claim For 'Wonder' Cancer Jabs", "Children 'Used As Guinea Pigs For Vaccines'", "Dangers Of Mmr Jab 'Covered Up'", "Teenage Girls Sue Over Cancer Jab", "Jab Makers Linked To Vaccine Programme", and so many more, including a rather memorable bad science story, the front page: " Suicides 'Linked To Phone Masts".

So I contacted Professor Harper. For avoidance of doubt, so that there can be no question of me misrepresenting her views, unlike the Express, I will explain Professor Harper's position on this issue in her own words. They are unambiguous.

"I did not say that Cervarix was as deadly as cervical cancer. I did not say that Cervarix could be riskier or more deadly than cervical cancer. I did not say that Cervarix was controversial, I stated that Cervarix is not a 'controversial drug'. I did not 'hit out' - I was contacted by the press for facts. And this was not an exclusive interview."

Jabs "as bad as the cancer" (Thanks, Evidence Matters!)
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Reuters reported last week that Natalie Morton, the teenage girl who died shortly after receiving an HPV vaccination, was definitely not killed by the vaccine. Instead, Morton was the victim of a large, fast-growing and previously undetected tumor in her chest cavity.

These kinds of tumors are very rare, and we don't know much about Morton's case. However, the Daily Mail has a heart-wrenching (and medically fascinating) interview with the parents of another teen who suffered a similar fate...

Inside George's chest cavity was an aggressive and rapidly growing tumour the size of a small football. In the few hours after George had gone to bed, the tumour had grown around his windpipe, cutting off his oxygen and causing irreparable damage to his brain. The tumour, which had started in an organ called the thymus gland in the chest cavity, was also crushing his heart and lungs and constricting the vital arteries supplying his body with blood.

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Building a bit off the "conflusion" (Bravo, btw, insert) post from yesterday, I'm going to launch right into something near and dear to my heart: The way biased and badly done health journalism can really mess up the people who read it.


Biased and badly done are two very different things. I don't have data on this, but I think it's fair to say that, when the main-stream media (which, BoingBoing aside, includes me) gets a health story wrong, it usually isn't trying to be intentionally wack. Trouble is, whatever the intent, it leaves you--the reader--in the same place. Conflused.

Luckily, there are people working to help you. Like, for instance, the good folks at Behind the Headlines, a project of the British National Health System that does Q&A, myth busting and in-depth explanations on the science behind top health news. I first found out about this from Ben Goldacre's Bad Science blog, which is, in itself, a great site everybody ought to be reading.

Dr. Alicia White, one of the aforementioned "folks" behind Behind the Headlines, has a wonderful primer on the questions you should be asking yourself every time you read health news. Until we police ourselves into doing a consistently better job, sorting the wheat from the chaff is (unfortunately) up to you. This will help. Plus, it's a fun read:

If you've just read a health-related headline that's caused you to spit out your morning coffee ("Coffee causes cancer" usually does the trick) it's always best to follow the Blitz slogan: "Keep Calm and Carry On". On reading further you'll often find the headline has left out something important, like "Injecting five rats with really highly concentrated coffee solution caused some changes in cells that might lead to tumours eventually. (Study funded by The Association of Tea Marketing)".

Evocative image courtesy Flickr user bdjsb7, under CC.

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Photo: Jason Fraser/Muspilli.com.

Let's talk about teeth, baby. Slate is doing a series on the American Way of Dentistry. It's mostly good, but it gets one thing wrong. In a piece on the problems poor people face getting dental care, author June Thomas writes,

The main problem is a lack of decent low-cost options. Chester Douglass, emeritus professor in the department of Oral Health Policy and Epidemiology at Harvard's School of Dental Medicine, puts it this way: "If you want to buy a good, inexpensive car, Volkswagen proved you could do it, then other people started being able to do it." The Volkswagen of dentistry has yet to be built.

In reality, there is a Volkswagen of dentistry. Or, at least, something close to that. (A Toyota Corolla of dentistry?) Like the Bug, it's an overseas import. But, amazingly, when this program first got going in the United States, the American Dental Association sued to stop it.

Actually, scratch that. What's really amazing about this story is that the little guys won...

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UPDATE: The server for the Science-Based Medicine blog is now back online, so the link in this story does work now. Hooray!

It seems like just yesterday we were all freaking out together about the discovery of H1N1. And now, here we are at flu season and our little pandemic is all grown up. In the meantime, there's been a lot of good work done on clearing up the questions surrounding this illness, but misinformation still abounds.

If you, or a loved one, are suffering from flu confusion, I prescribe this handy primer on the basics. Written by Dr. Joseph Albietz, Assistant Professor of Pediatrics at the University of Colorado, Denver, and The Children's Hospital, it starts at the very beginning (seriously, the first question is, "What is Influenza?") and provides a great overview of the flu in general, and H1N1 in particular.

Even if you feel like you've successfully graduated from Flu 101, there's a lot of great higher-level discussion and Q&A going on in the comments of this post. Enjoy, and happy learning!

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When I was visiting BoingBoing last spring, I told y'all about some research being done by Lewis Ziska from the USDA and Jackie Mohan from the University of Georgia on how poison ivy responds to rising levels of carbon dioxide in the atmosphere. (Answer: In a way that kind of sucks for people.)

What I didn't tell you was how the scientists figured out that CO2 makes ivy grow incredibly fast, and problematically poisonous. While some of the evidence comes from controlled studies done in a tidy, little lab, there's more to it than that.

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Healthy baby poop gallery

Wonder what healthy baby-poo looks like? Wonder no more: here's a gallery of normal, healthy steaming baby excreta:

This photo guide to baby poop will give you a good idea of what's normal and what's not as your newborn grows, drinks breast milk or formula, and starts eating solids. You'll find out when not to worry and when it's wise to be concerned.

As a general rule, if you see anything completely out of the ordinary in your baby's diaper, play it safe and call the doctor.

Fair warning: These are pictures of real baby poop! Please view only if you're comfortable with that. If not, you can read this description without photos instead.

Baby poop: A visual guide (via Neatorama)

(Image: Diaper pail, a Creative Commons Attribution photo from Ingamun's photostream)

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(Update: From a French documentary film, says this 2004 snopes item.) This minute-and-a-half long YouTube video appears to show a mommy giving birth to her baby in a pool of water, while a curious dolphin swims and pokes around. What I don't know: Is this real life? Is it viral marketing? A film trailer? Fodder for some new furries fantasy site? Is the idea of a dolphin poking around the mom's ladyregions cute or disturbing? What does the infant think? How long can infants breathe underwater while connected via umbilical cord? Where did the video come from? Why can't I stop watching? Discuss. (via @tara, and others)
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American megacorp Cargill, which brought in $116.6 billion in revenue last year, is in the spotlight this week around the story of Stephanie Smith: the 22 year old children's dance instructor was paralyzed from the waist down after eating E. coli-tainted hamburger traced back to the meat supplier.

She was in a coma for nine weeks (that's her, hospitalized, in the photo below), and can now no longer walk. "Ground beef is not a completely safe product," one food safety expert in the article is quoted. Well, no shit. Snip from an extensive investigative report in Sunday's New York Times:

meat.hospital.650.jpg The frozen hamburgers that the Smiths ate, which were made by the food giant Cargill, were labeled "American Chef's Selection Angus Beef Patties." Yet confidential grinding logs and other Cargill records show that the hamburgers were made from a mix of slaughterhouse trimmings and a mash-like product derived from scraps that were ground together at a plant in Wisconsin. The ingredients came from slaughterhouses in Nebraska, Texas and Uruguay, and from a South Dakota company that processes fatty trimmings and treats them with ammonia to kill bacteria.

Using a combination of sources -- a practice followed by most large producers of fresh and packaged hamburger -- allowed Cargill to spend about 25 percent less than it would have for cuts of whole meat.

Those low-grade ingredients are cut from areas of the cow that are more likely to have had contact with feces, which carries E. coli, industry research shows. Yet Cargill, like most meat companies, relies on its suppliers to check for the bacteria and does its own testing only after the ingredients are ground together.

E. Coli Path Shows Flaws in Beef Inspection (New York Times)
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Boing Boing reader/commenter catastrophegirl, commenting in a thread about an enraged hillbilly user of flavored chewing tobacco, points to her Flickr photoset documenting her quest to make DIY kretek (clove cigarettes). These lung-rotting treats are much beloved by goths, and by my inner 14-year-old punk girl. Both catastrophegirl and "skoalrebel," each in their own ways, were upset about the Obama administration's recent ban on flavored tobaccos. The new FDA kibosh makes it illegal to sell stuff like clove cigs, and skoalrebel's beloved Copenhagen whiskey deeyup.

Catastrophegirl commented,

I heard about [the ban] the day it was signed. Now i am back to smoking a pipe at home and smoking homemade clove cigarettes when i drive. Besides the difficulty involved in driving and lighting a pipe, cops for some reason cannot fathom a caucasian woman smoking a briar pipe that doesn't have weed in it.

It's kind of a pain to set up and took me a while to find the right tobacco for my tastes, but aside from my little nicotine addiction, I am going to thoroughly enjoy smoking my clove cigarettes in public. The law is about sales and distribution. it does not cover making your own at home and smoking them as far as i have been able to glean from the law. If someone could point me at the full text of it, that'd be neat - even the FDA site has an abbreviated version.

I remember the taste of cloves well. In my memory, it is inextricably linked with certain songs by Siouxsie and the Banshees, The Damned, and other bands from the last great days of leather, studs, and black vinyl. I've long since become a nonsmoker, and believe that smoking and chewing are horrible habits -- but on this point, I can even agree with skoalrebel: the ban is total bullsheyut. Consenting adults ought to be able to purchase and smoke/chew the stuff if they want. The ban is a reacharound for Big Tobacco.

"Making Kretek" (Flickr)

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Dude, her head's bigger than her pelvis. From Photoshop Disasters (thanks, Antinous!)

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I love the citizen science motivation behind this doula/student midwife's project to photograph her cervix every day through one entire month: "to better understand my cycle and the changes in my cervix throughout the month."

Beautiful Cervix Project (Thanks, Fipi Lele!)

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Nelson C sez, "Daryl Cunningham (a student mental health nurse based in London) is working on a comic book called Psychiatric Tales, due out in early 2010. On his LJ he posts a chapter on schizophrenia."

Schizophrenia (Thanks, Nelson!)

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American health care UI: snapshot

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BB reader Taylor says,

Some friends of mine who were working at a call center at the Minnesota Dept. of Human Services told me they were working on a "throwback" system that hasn't really been overhauled for a few years.

Here's how "throwback" it looks.

But you know what? I bet it works perfectly.
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The Lessons of Lindsay

2267_1.jpgA powerful and beautiful photo-essay by Matt Mendelson about a powerful and beautiful young woman from my home town named Lindsay Ess, a fashion major at Virginia Commonwealth University. Same school, even the same building where I spent a lot of time as a kid, growing up -- so the story *really* felt familiar and personal to me, even though I do not know her, and cannot imagine what it feels like to endure what she's prevailed through.

The story begins at a student runway showing, where Linsday is looking on:

Lindsay, it should be noted, has no hands to clap and no feet on which to get up. She had them back in the summer of 2007, when she was tall and thin and had just graduated from VCU with a fashion merchandising degree. Then, to use her words, a blur. When she entered Henrico Doctors' Hospital that summer, the procedure to remove a small piece of inflamed intestine, a nagging complication of her Crohn's disease, was supposed to go routinely. But supposed to go routinely rarely turns out well, and there hasn't been a routine day in Lindsay's life ever since. Not since the leak, not since the sepsis, not since the organ failures, the brain seizures, and not since the coma. Definitely not the coma. Not since one day in August turned to October and then drifted on towards Christmas. Certainly not since the quadruple amputations, the cruel coda to having been so close to death all those months and then surviving. Oh, honey, you know what they're going to do, right? the nurse said. There's no routine to being bathed and fed and dressed like a child mere months after you've graduated college, and no routine to learning how to walk again at the age of twenty-five. No routine in continuing a long-distance relationship with someone who admits to having originally been smitten by your looks, or to being with your mother almost every waking hour. There's no routine for taking a fistful of pills a day--the Pentasa, the Entocort EC, the Lexapro, the Keppra, the Urosidol, the Spiranolactone, the Zolpidem, the Lyrica, not to mention the occasional shot of actual alcohol. There's no routine, no manual, for wishing you were whole again, so that just one morning of your life you could actually wake up and make it to the bathroom on your own, even if the arms and legs you now covet so are made of acrylic and not skin and bone and muscle. And, perhaps most of all, no routine for the long, slow realization that those acrylic arms and legs might not, in the end, be the answer to anything. If you're Lindsay Ess, routine pretty much stopped on August 3, 2007.
The Lessons of Lindsay (story) Sports Shooter Q & A: with Matt Mendelsohn (chat with the photographer).

(Sports Shooter, via @Glennf)

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A wonderful infographic over at the LA Times of pot dispensaries throughout greater Los Angeles. I love this. You can even see which have licenses, which don't, and how close some of them are to schools, or to other dispensaries.

I live in an LA neighborhood in which there are far more weed dispensaries per square mile than Starbuckses. Almost without exception, the ones around here are shady, creepy and not professionally run. My favorite is either the one where the "clinic" is split into two parts, one of which doles out 420, the other Botox and Juvederm injections (same doctor doing the prescriptions for both, apparently). Or, the other one where bikini-clad, hard-eyed Euro-hos jump right out at you in the street, grab you by the arm, and squeal, "Hiyeee! Doo yoo vant to get leeegal?" No: I want to punch you.

I don't use the stuff at all (I don't drink or use any recreational drugs), but I'm all for straight-up legalizing pot -- if only to banish the recent proliferation of these gray-market dispenaries, which I believe are directly linked to a spike in crime and black-market drug activity around my 'hood. It's all I can do to not flip those pot-hawkers the bird when I walk by.

Map: Where's the weed?, and related: Mapping L.A.'s marijuana dispensaries (latimes.com)

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Dogs Doing Yoga

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I can't tell if these are creepy, adorable, stupid, awesome, or all of the above. But because I can't tell, I am compelled to blog. Above, Lili the pug doing Padmasana, the lotus position. Yoga Dogs (via KodakCB)

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Researchers at Ohio State University have studied the relationship that hairdressers have to older clients, who are apt to discussing all their problems during haircuts. As such, the stylists are well-situated to act as early-warning systems for dementia, neglect and poor health.
"Hair stylists are in a great position to notice when their older clients are starting to suffer from depression, dementia, or self-neglect," said Keith Anderson, co-author of the study and assistant professor of social work at Ohio State University.

"While not expecting too much beyond the scope of their jobs, we may be able to help stylists direct elderly people in trouble to community services..."

"Their older clients may sit in a chair for an hour or longer while they're having their hair done, and this may happen once or twice a month. So stylists are in a good position to recognize when things change with a client, and when they may need help."

Hairstylists Can Help Identify Older Clients Who Need Health Services
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I'm seeing a number of tweets from participants and organizers of the recent PAX (Penny Arcade Expo) which indicate at least one case of swine flu has been confirmed, and more feared.

kurtz.jpgPAX is a three-day game fest for tabletop, videogame, and PC gamers, and took place September 4-6 in Seattle. Perhaps folks more familiar with the details than I can update us in the comments here. Organizers are using the hashtag #paxflu to track updates on Twitter. Of course, this could also be a very crafty viral marketing campaign. Seriously, though: to those who contracted it or are at risk, get health care pronto, and get well soon. (via @willsmith)

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Beloved Hugo-award-winning writer, dancer and choreographer Jeanne Robinson (wife of Spider Robinson) has cancer, and it has taken a turn for the worse. Spider Robinson describes their financial situation as dire ("running on fumes") and so he's asking for cash to help them get through this. There's lots of ways to give, from bidding in a charity auction to attending a benefit concert to buying Spider's books. I've just sent them what I could spare -- Jeanne and Spider have given me so much pleasure and wisdom over the years, it was an honor. I hope that some of you who've been touched by them will do the same.

As some of you know, I've been dealing with a rare biliary cancer for many months. It has already taken my gall bladder, bile duct and most of my liver...and it's not done yet. It looks like in a matter of weeks I'll be facing chemotherapy, in an attempt to at least slow its progress...

There are many things I need as I prepare for my third act--supplements, prescription drugs, counseling, expensive alternative therapies, etc--and they all cost money...money I don't have. So, after all these months of being silent and private about my illness, I recently said yes to my close friend Michelle Meyrink when she asked if she could organize a benefit concert for me. http://www.spiderrobinson.com/images/Dream%20for%20jeanne.pdf

Others have since jumped in, including my Vancouver Buddhist sangha, Mountain Rain Zen Community, and a dear friend in Florida, Jan Schroeder, who has been auctioning donated items (such as rare Babylon 5 scripts and other SF memorabilia) on eBay for me. Goods or services can be donated for the auction by contacting Jan at dreamforjeanne@aol.com. Several other methods of helping out, including a straightforward PayPal donation account, can be found at http://wedreamforjeanne.blogspot.com/.

Another way to help would be to buy our books from Amazon by clicking-through from Spider's site, so we can get the affiliate commission. We've spent decades holding up visions of humankind's highest evolutionary potential while entertaining you enough to keep you turning pages.

The Third Act
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Teen cries true blood

Tennessee teen Calvin Inman has a medical condition that causes him to cry tears of blood. The only context in which I've ever seen or imagined this is vampire novels and TV shows, like the HBO series "True Blood." I had no idea this happened in real life to non-vamps.
art.cries.blood.wate.jpg[Inman's mother] hoped that once doctors finally witnessed the phenomenon, there would be answers. But that wasn't the case. "The people at the hospital said they had never seen anything like it," Mynatt recalls. She says her son underwent an MRI, a CT scan and an ultrasound, but none of the tests had abnormal results. "'We don't know how to stop it,'" Mynatt remembers being told by doctors. "It just has to run its course."

Dr. Barrett G. Haik, director of the University of Tennessee's Hamilton Eye Institute, says there is an answer, sort of. He says "crying blood," a condition called haemolacria, is common in people who have experienced extreme trauma or who have recently had a serious head injury. But a case such as Inman's is still a medical mystery. "What's really rare is to have a child like this," Haik says. "Only once every several years do you see someone with no obvious cause."

Via CNN, here's the related CNN segment video on YouTube.
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The cover sheet of the daily "Incident Action Plan" for firefighters battling the Station fire still burning in Los Angeles contains an odd warning: "No energy drinks." Officials say the high amounts of caffeine these beverages contain can be particularly dangerous under these working conditions. Snip from LA Times article:
"It's been a concern," said Nathan Judy of the U.S. Forest Service. "When they drink those things, it dehydrates them."

Judy said that during a previous fire some years back, a firefighter consumed four cans of Red Bull in one day and went into diabetic shock. Since then, fire officials have warned crews to re-energize in other ways, he said. "Drink water, drink water, drink water," Judy said. He also said that the meals served to firefighters each day are high in calories because firefighters are "going through calories like crazy on the line."

In related news -- the Station fire has been determined to have been caused by arson. Two firefighters died fighting the Los Anglees blazes, so the arson investigation will also a be homicide investigation.

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art.pepsi.denegri.jpgSay what you will about Mark's grody kombucha, but it does not contain floaty dead amphibians: Frog or toad found in Pepsi can, FDA says
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(Warning: video is totally gross). Via this SF Gate item, a Chicago-based animal rights group called Mercy for Animals shot the video above of baby chicks being ground up alive at an Iowa chicken processing factory. It's pretty disgusting, and reinforces a personal decision I made to avoid consuming eggs that come from this sort of place:

Hy-Line admitted to the Associated Press that "instantaneous euthanasia" (e.g. grinding up male chicks) is a standard practice and claims that it is also supported by the animal veterinary and scientific community. (Male chicks are less valuable because they can't lay eggs or be raised quickly enough for meat.) Mercy for Animals estimates that 200 million male chicks are killed annually and United Egg Producers confirmed this figure.
I'll take the happy kind of eggs Mark grows in his back yard, or none at all, yo. (Thanks, Brian Lam)
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Wired's Steve Silberman explores the fascinating and increasingly important placebo effect, which appears to be getting stronger:
The upshot is fewer new medicines available to ailing patients and more financial woes for the beleaguered pharmaceutical industry. Last November, a new type of gene therapy for Parkinson's disease, championed by the Michael J. Fox Foundation, was abruptly withdrawn from Phase II trials after unexpectedly tanking against placebo. A stem-cell startup called Osiris Therapeutics got a drubbing on Wall Street in March, when it suspended trials of its pill for Crohn's disease, an intestinal ailment, citing an "unusually high" response to placebo. Two days later, Eli Lilly broke off testing of a much-touted new drug for schizophrenia when volunteers showed double the expected level of placebo response...

Part of the problem was that response to placebo was considered a psychological trait related to neurosis and gullibility rather than a physiological phenomenon that could be scrutinized in the lab and manipulated for therapeutic benefit. But then Benedetti came across a study, done years earlier, that suggested the placebo effect had a neurological foundation. US scientists had found that a drug called naloxone blocks the pain-relieving power of placebo treatments. The brain produces its own analgesic compounds called opioids, released under conditions of stress, and naloxone blocks the action of these natural painkillers and their synthetic analogs. The study gave Benedetti the lead he needed to pursue his own research while running small clinical trials for drug companies.

Now, after 15 years of experimentation, he has succeeded in mapping many of the biochemical reactions responsible for the placebo effect, uncovering a broad repertoire of self-healing responses. Placebo-activated opioids, for example, not only relieve pain; they also modulate heart rate and respiration. The neurotransmitter dopamine, when released by placebo treatment, helps improve motor function in Parkinson's patients. Mechanisms like these can elevate mood, sharpen cognitive ability, alleviate digestive disorders, relieve insomnia, and limit the secretion of stress-related hormones like insulin and cortisol.

In one study, Benedetti found that Alzheimer's patients with impaired cognitive function get less pain relief from analgesic drugs than normal volunteers do. Using advanced methods of EEG analysis, he discovered that the connections between the patients' prefrontal lobes and their opioid systems had been damaged. Healthy volunteers feel the benefit of medication plus a placebo boost. Patients who are unable to formulate ideas about the future because of cortical deficits, however, feel only the effect of the drug itself. The experiment suggests that because Alzheimer's patients don't get the benefits of anticipating the treatment, they require higher doses of painkillers to experience normal levels of relief.

Placebos Are Getting More Effective. Drugmakers Are Desperate to Know Why. (Thanks, Steve!)
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Here's a HOWTO for building your own electrocardiograph -- many such plans exist, but this one lowers the cost and part-count by ingeniously repurposing the sound-card from a PC.

Digitization: Once amplified, the ECG signal along with a bunch of noise is in analog form. You could display the output with an oscilloscope, but to load it into your PC you need an analog-to-digital converter. Don't worry! If you've got a sound card with a microphone input, you've already got one! It's just that easy. We'll simply wire the output of our ECG circuit to the input of our sound card, record the output of the op-amp using standard sound recording software, remove the noise from the ECG digitally, and output gorgeous ECG traces ready for visualization and analysis!

DIY ECG Machine On The Cheap (via Make)
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  • "I see a business opportunity. $30 or even $15 is way too much to charge for this, unless that is in Egyptian currency. Maybe $5, or $10 for a pack of 3. And shipping it from China is way too expensive, and slow. The way to do this is to have the website and payment processing run from a "liberal" foreign country, say US or Europe (where they cannot be raided and shut down by local authorities). A local manufacturer just pops the thing in the mail and it arrives in 2 days (instead of 2 weeks for something f..."
  • "My source, which is a book in a box in someone's garage, is a first-hand account of Elizabeth I's coronation...."
  • "It's funny enough people are arguing over 100 years of data when most UNDERSTOOD data for geologist (I belong to that group) spans MILLIONS (sometimes, maybe, 100s of thousands of years) such as the K-T boundary. The data we understand doesn't work in that scale. Many who have an actual education (not NPR) in earth sciences, and DO NOT depend on government grant money, believe that we couldn't possibly put the data we do have, in comparison to studies by paleo-climatologist, and have a definitive model. ..."
  • "Remind me of Neck Face. I really want one actually..."
  • "For me,a Chinese,I have been used to it.Otakus in Japan have the incredible admiration to animations.That is not just a way to get rid of lonliness feeling.It depends on how he love the character.For him,she maybe not so easy as bits of datas,but real human.Which may just be a secret to us foreigners...."
  • "Frankly, Antonius, you're going to have to do better than that. Elizabethan candles were either made from tallow (cheap, smelled a bit, smoky) or beeswax (pretty expensive, no smell, no smoke).Large candles were often called torches, and, of course, your source could well have been talking about stage lighting, where the choice of implement was often meant to create mood (candles=indoors, torches=outdoors), and not to actually light an outdoor, daytime performance. (My own source is a gloss of "Lighting th..."
  • "Owww, it must be really hurtful when someone questions your religion... No exact scientific proof but you really, REALLY hope it's true so you don't go to hell... but then again, who am I to question "Facts"..."
  • "i for one, have exactly 100 facebook contacts. but that's a pretty arbitrary number. i cut out everyone who i accepted, but i don't really know them, or i didn't really like them the short length we spent in school/work. and then about 95/100 of those *friends* are acquaintances, or people i might say hi to but not much else. i really only have a handful of close friends and that's it. small family, too. maybe i'm just an antisocial socialist...."
  • "Here, here. A dedication to the social critics, Bill, Bob, and many others... http://www.youtube.com/watch?v=JltNLkh03ME..."
  • "But...a quick fix for clinical depression is to keep the depressed person from sleeping. Of course, the depression comes right back as soon as they sleep again. Depressed people frequently oversleep, which can cause it's own dysphoria...."

 

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